Yesterday we took J to the movie theater to watch one of his favorite movies on the big screen for the first (and quite possibly only) time. I don’t know if you are familiar with Turner Classic Movies’ screenings of movie classics through Fathom Events, but if you are not you should check it out. Granted, it’s not everyone’s cup of tea, but you might find something to interest you.
We have, so far, watched The Maltese Falcon and The King and I, and J got to experience Singin’ In the Rain in all its full-color, big-screen glory yesterday. We timed our arrival quite well, and were pleased to see that there were quite a few people there. Carousel had been removed from the list because, I suppose, not a lot of people pre-bought tickets or showed interest. I was bummed because I wanted to take J to that one, too.
It is always fun to watch J having fun. The moment he saw the opening sequence he smiled, but by the time Make ‘Em Laugh rolled around he was bouncing in his seat and grinning from ear to ear. His most favorite number (Good Morning) made him positively giddy.
Today he is sitting in his TV room and re-watching the movie with a smile that reminds me of Rex saying in Toy Story 2 “I LIVED IT!!!!”
Friday night was rough. It was more about J wanting to impose his will than anything else. My hot flashes didn’t help. Dada’s work-related stress doesn’t help either. We all know that it’s not good to “cross the streams” (to quote another big-screen experience J loved: Ghostbusters) but it’s inevitable some times.
Upheaval has come to us without us inviting it in, and we have to deal…there’s no other option. How gracefully we’ll manage it is up in the air. With TGG’s baby about to be born any day now things get a little testier still. Any time the phone rings we wonder if that’s what the call is about. More often than not it’s someone asking if we want to give money to charity (some of very suspect provenance,) and other times it’s “service calls for our Windows operating system.” I recently replied to “this is about your Windows,” with “they’re ok as-is…no use giving them a good cleaning until spring.” The caller was baffled. Also baffled was the one who called to tell me “I am with senior services,” and got an earful in return. (For the record: not technically a senior yet, but I still don’t like being rudely awakened by the phone when I’ve dozed off on the couch during a peaceful moment when J doesn’t demand my attention. That is “Autism-mom random miraculous snoozing” not a “senior” nap.)
The med is doing what is expected of it (cleaning out the cobwebs that were blocking our path to helping J,) and we are trying to do what is expected of us (helping J work through the things that hinder him.) On the plus side: SIB is at its lowest rate since autumn; on the minus side: that belly is getting bigger in spite of our best intentions and efforts. No, the pill doesn’t make him fat, but it increases his appetite and sort of slows down his metabolism. He has gained weight, but we are still working on keeping this particular strain at a minimum. He exercises regularly, eats his veggies, controls his portions…it’s going to take a great deal of effort and determination, but until such a time as we can take the med away again, we will have this on our plate…
I am happy to report that yesterday morning I managed to get him to keep his bandaids and brace off for over an hour. He helped make breakfast, and then waited until I called him to come have them redone. It is becoming an easier thing to do, parting him from those comfort objects, but we still have a long, long way to go to get back to where we were before.
But we’re going with the whole carpe whatever thing. We cannot just wait until the next good opportunity for anything rolls around. We need to jump on the bandwagon of whatever degree of progress, calm, fun, happiness is passing by at the moment…
Yes, yes, La La Land is a hit, and it sounds like fun, but Singin’ In the Rain was showing on the big screen where we were and none of us had seen it before. La La Land was showing, and the theaters were full…but it will be there next Sunday, and -quite possibly- the Sunday after that one, and the one after that… It was time to carpe…and the smile on J’s face said that carpe was the verb to go with then and there… In sixty-five years maybe La La Land will be to some kid what Singin’ In the Rain is to J now…and I hope his parents carpe like we carpe-ed yesterday. Because that moment of happiness has made for a relaxed J today, and that lifts fog and it makes it easier to help him help himself.
So carpe away, my friends…if it helps that is just awesome!